Running with the Watchman Life has a way of speeding up as we get older

At 6am I’m half-asleep when we assemble at Toxic Yoga, our regular meeting place. It’s the overpass opposite the Coke sign that crosses William Street. We’d once brainstormed potential uses for this overly wide and under-utilised land bridge. Outdoor yoga sessions were one suggestion. The high-level car fumes make it toxic but perhaps that could be a thing, like hot yoga. Needless to say the yoga never happened but the name stuck.

Today, Shawn’s t-shirt reads, ‘I Knit’ and shows an unravelling ball of wool. His daughter made it as a proclamation of his hobby and he wears it proudly. Rubber strips peel away from the soles of his orange running shoes. He’s fit these days, almost muscular, daily exercise having replaced his former beer drinking passion. Neither short nor tall, his thick body is clothed in random garments that form his running attire. Born to a Chinese-Malaysian father and Queensland mother, he describes his appearance as a mature Ronny Chieng: International Student.

Shawn scratches his shaved head and we go through the motions of our awkward greeting. We haven’t resolved a satisfactory solution, not quite shaking hands, not quite nodding. I’d once tried a shoulder pat but we both regretted that. So instead this morning I tell him about the dream my alarm interrupted 15 minutes ago, a Star Wars battle scene,

“Blasters or Light Sabres?” he asks.

We do a quick inventory of injuries: his foot, my hip, his knee and then we start. The first block is run mostly in silence except for the jangle of his watch, a clunky old analogue with a loose metallic strap. There have been a few watches recently: the Casio digital model circa 1983 and before that he’d trialled an Apple watch which hadn’t lasted long.

“It’s actually bloody useless,” he explained.

“What’s with you and watches?” I asked.

“I like to know what time it is.”

Running down William Street is the hazardous part of the run while we’re sleepy and it’s dark. I’m wondering why I’d had a Star Wars dream let alone shared it. Building speed downhill we’re forced to stop and start at the many intersections. Dodging drunks, street-cleaners and trannies we’ve been propositioned, threatened, chased and almost run over by cars running early morning red lights. While we wait for each green man we’re adjusting shoelaces and stretching calves. Shawn’s calves are enormous, a legacy of eschewing car-ownership for cycling.

By Cook and Phillip Park at the bottom of the hill we’re safe. It’s unlit and Shawn steps on the loose manhole cover, which clanks in the dark and shocks us every time but there are no more cars. We dodge the bin-feeding ibis and the homeless people and then on past the Cathedral school up the hill: No-Talky Hill. No-Talky Hill is our first incline, from the Domain car park entrance up to Art Gallery Road. The legs start straining, the first puffing kicks in and conversations drops.

 

When I first met Shawn Seet in 2005 he was making his name as a TV director in commercial TV police dramas having started in the edit room. Our kids were at preschool together and he and his partner Sarah lived nearby. Canal Road wasn’t the best show going but it gave him a profile and anyway, I was impressed. He’d made All Saints and The Secret Life of Us and, knowing nothing of the TV industry I was interested. He seemed quiet and reserved but when he answered (almost) everything correctly at school trivia night people noticed. His big break came when chosen to direct Underbelly for Channel 9 on primetime TV. At home we cheered as his name appeared on the credits and we gave him glowing reviews the day after. The show’s regular sex scenes became a talking point on our runs. When he recounted a particular scene where he’d demonstrated a Reverse Cowgirl to the two actors I was hooked.

At the top of No-Talky it’s on past the Art Gallery and down into the Botanic Gardens. We’re striding out now, hitting a good pace. When overtaken we comment on the other runners: too young or showing off, and we mock their vigorous running style.

The pathway around Farm Cove is blocked by security and fencing protecting yet another of Sydney’s outdoor events. But this is forgotten as the early sun lights the city facades and we look across the harbour to the Bridge and the Opera House. Then it’s on to Mrs Macquarie’s Chair and the halfway point of our run. After a sharp incline to the Chair we’re looking east towards the Heads with the meditators, photographers and tourists who share the sunrise. We’re puffing hard as we round the point and it feels like we’re heading for home.

I’d been running the same five-kilometre circuit on my own forever. When Shawn asked if he could join me it felt weird, strangely intimate, like a man-date. We made a standing arrangement to run each Wednesday but sometimes he wouldn’t turn up after a late night session. Sometimes he just forgot. I presumed it wouldn’t last, that he didn’t show the commitment. I’d send a reminder text on Tuesday nights to confirm and he told me I didn’t need to, that it was a standing arrangement. I felt I’d broken some bro’ code in mentioning it. He was a lot less fit in those days. The years of being the last man standing at whatever party going had started to impact and when he first came running he took a lot of strategic walking breaks.

After his fiftieth birthday, Shawn increased his fitness regime with cycling and swimming on the non-running days. While away for work he’d run on location: along Broadbeach on the Gold Coast for The Hiding and, when filming in Melbourne he’d run along the bay at St Kilda. I’d always enjoyed our conversations but recently our chats darkened to topics of ageing and mortality as his list of ailments grew. Then, to the amazement of everyone, he stopped drinking.

Garden Island, Sydney Harbour, circa 1910-1928. Wikipedia Commons.

Along the eastern side of Mrs Macquarie’s Chair we look across to the Garden Island naval base. On dark wet mornings the sodium floodlights spill light on the empty concrete concourse, its warehouses standing silent witness to the quiet drizzle. Talk turns to Nordic-noir and The Bridge. We imagine trussed bodies in abandoned lorries beyond. Shawn launches his monologue on Scandinavian crime shows being the epitome of current television. I run on, thinking about my own struggle to follow the interwoven plotlines and extensive character lists.

Running past Boy Charlton pool he suggests integrating a quick swim as part of the run. It’s a level of semi-nudity I’m not ready to share and we keep going. Then it’s down the stairs into Woolloomooloo and round past the Finger Wharf. A sculpture series is installed along the boardwalk and we’ve critiqued the selection: a range of life-sized human figures with rabbit or dogs’ heads: it’s a dog’s life. Paparazzi dogs with cameras: news hounds. Dogs on surfboards: surf dog. We fantasise about throwing the art works into the bay: dog-gone.

As we pass Harry’s Café de Wheels the van’s remnant pie stench hits us and I reflect on my failed attempts at vegetarianism. At the McElhone Stairway from Woolloomooloo up to Victoria Street it’s a massive rise and we take the stairs two at a time. Gasping for breath at the top we pause to admire the city skyline. Shawn filmed a scene from Underbelly here a few years ago and I’d scanned the background to make sure the cityscape was chronologically correct: that the right buildings were in the background for the year. It matched my pedantry in giving feedback on The Hiding. I’d advised him that the main character had been on the wrong side of City Road to catch a bus from Sydney Uni to the safe home in Petersham. He hadn’t been impressed.

We walk up Victoria Street to the first driveway. There are a few dog walkers around now, staring at phones while their dogs crap free: dog-shit. Sarah’s Awkward Dog Photo series was a 2016 Facebook highlight. Shawn, never a dog-lover, was photographed in a number of friend’s homes holding their respective canines in a variety of clumsy positions captured just as the dog was successfully squirming out of Shawn’s arms watched by his anxious face.

The first driveway crossing is our cue to start running again on the home stretch. The speed increases up Victoria Street as we dodge pedestrians and coffee crawlers. We’re side-by-side and I’m not sure if we’re competing but the pace is increasing. Sailors are walking down to Garden Island from the station and I leave the footpath for the road to avoid them and gain a slight lead before arriving once more back at Toxic Yoga.

In 2015, when Shawn was nominated as Best Director at the AACTAs for The Code, we tried to tune in. He’d talked-up his newly purchased suit and we didn’t want to miss that image. Sarah was sending Facebook updates from the ceremony while we tried to spot him in the audience on TV. Her updates weren’t synching with the shots we saw on TV and we gathered it had been delayed. There’s a break, and then a simple message, “Shawn Seet!” with a photo of the statue award.

Shawn’s become increasingly obsessed with exercise and now runs on days I can’t make it. The passion he once found for Asahi is being poured into his morning ritual. Although every plate of food still gets doused with salt he wants to do longer and longer runs. We talk about Murakami’s obsessive running habits: 9.6 kilometres a day, 6 days a week.

“Well he didn’t have to get the kids to school on time,” I say.

Our runs start to vary and increase. We cross the Bridge to Kirribilli and back. The harbour is stunning but the ten-kilometre length is a full-Murakami and I need a recovery lie-down afterwards. He suggests running more days each week but I’m not sure I can keep up. I wish he’d start drinking again and pull back on the exercise but he seems obsessed.

 

In June 2016 Shawn takes a family holiday in Victoria for a few weeks. At last I can stay in bed on cold mornings. It’s a winter break from his Kurosawa master classes and the explanations on why Linux is a superior computer operating system and how to solve D.A.’s cryptic crossword on Fridays and why Proust can write a whole book where nothing happens. A reprieve from the guilt I feel for having not yet watched every episode of House Of Cards or True Detective that he gave me on USB.

Life slows down in this winter recess and I leave the running for a while. A week later, on a Saturday morning I’m kicking the footy with the kids when a text arrives from Sarah (unusual) in Melbourne.

“Your running buddy will be out of action for a while. He’s ok, but in hospital for a week. He had a heart attack yesterday.”

Oh my God. The words go blurry on the screen. I read again to double-check. I text back messages of support and seek information but nothing returns. I’m desperate for news but there’s no one to contact, no more updates.

Finally on Sunday a photo arrives by text from Sarah. There’s Shawn tucked up in a hospital bed eating a bowl of yoghurt, machines and tubes everywhere. Definitely pale but, ever the director, it’s a composed image. He’s studying a Health Department booklet, You and Your Heart, with an earnest expression on. The glasses perched on his nose make him look like Homer reading something serious and I know he’s going to be ok.

Details emerge: he’d been hard-core swimming in the hotel pool; pumped after learning the BBC had bought the UK broadcast rights to Deep Water. Chest pains started and continued through breakfast. Initially he’d ignored them but the family insisted he went to the hospital to get checked out. Fortunately St Vincent’s was just across the road. From there they’d gone the full banana, rushed him off, put a stent in and told him how lucky he was. Apparently it had been that close.

A week later Shawn returned home and lay low, leaving the house only for doctor’s appointments. I don’t see him but we exchange texts. Shawn sends emojis of pills and ambulances and the one that looks like a smiling mound of shit. It’s a world away from the little pictures of running figures and glasses of beer and confused smiley faces that we used to swap. I go running alone and think about how life moves on, eras end and people die. My grandmother had gone the year before and that still weighed on my mind.

Then just over a month later he texts that he’s ready to join me, but walking only. It feels like a John Howard media call but I’m delighted that he can do even that.

“No green and gold tracksuit?” I ask as we assemble at Toxic Yoga for the reunion tour.

He’s thinner and nervous. So am I. We walk slowly, self-consciously and he reassures me he’s got a special resuscitator and phone in his pocket. I wished I’d done a St John’s First Aid course at some time and can’t quite shake the mental image of having to give him mouth-to-mouth if push comes to shove. Shawn talks about his medication and his cardiologist and his rehab class. We are both looking into the grim future. But we walk on doing a shorter circuit in the same time. It’s incident free and a relief for us both to finish the course safely. At Tropicana where we’d always shared a ham and cheese omelette after the run he’s now ordering porridge and lining up tablets, explaining the various dosages in milligrams. He offers a spoonful of porridge but I decline and look away.

The weeks roll by and, with doctor approval Shawn starts some gentle cycling while preparing for his next show. Preparation includes, as for all his shows, the purchase of five identical shirts. He explains that this eliminates one anxiety, the decision of what to wear each morning as he dresses before shooting.

“Apparently Einstein did the same,” he says.

After a month of walking he starts running again, very slowly at first but it’s a breakthrough.

Sydney Harbour. 2018. Photography by Benjamin Giles.

Shawn’s latest show is a big one, the feature film remake of Storm Boy.

“You don’t want to stuff this one up,” I say, helpful as ever.

“No, this will either make or break my career,” Shawn says, looking past me into the distance. “I’m pretty worried about it actually.”

He’s travelling to South Australia scoping the Coorong for locations and having ‘meetings’ with film people. Five pelicans are put aside in a Queensland sanctuary, being groomed to become the chosen Mr Percival. Nationwide auditions are being held to cast the Boy. He visits Geoffrey Rush at home in Melbourne for some script development and I’m keen to hear details but wary of sounding desperate.

“So, um, what’s his house like?” I say, trying to sound nonchalant.

“I saw the BAFTAS on his mantelpiece but couldn’t see the Oscar. Perhaps that’s in a special place,” he says.

The film’s to be made entirely in South Australia: pre-production, shooting and post-production, so he’ll be away in Adelaide for six months. We increase the running frequency before he goes but he’s struggling with a sore foot.

“I was jumping in to the ocean pool at Thirroul over Easter and it looked like the deep end but it was actually curved so I landed hard on my foot,” Shawn explains.

“Are you going to see a doctor and get it x-rayed?”

“No, what’s the point. They’ll only tell me to stop running.”

 

Storm Boydirected by Shawn Seet, will be released in January 2019.

An Ode to Campbelltown It’s nice to be home

It was an innocent kind of childhood, growing up in the city of Campbelltown in Sydney’s South West. As kids, we spent our afternoons racing around our cul-de-sac, dumping rusted bicycles on the grass to run in for pikelets and jam with the neighbours. I usually had grass stains on my knees from playing touch footy in the park across the road. That was before the older boys set up camp and tried to cut a deal. They wanted me to swap my new bicycle for a block of sandstone they had, unbeknownst to them, stolen from my very yard.

I had my first date at Dumeresq Street Cinema when I was 12. I had one boyfriend sitting to the left and one to the right. We watched iRobot for $5 and one of them tried to put his arm around me. I remember spending the duration of the film with my elbows firmly planted on my knees, choc top in hand, terrified of letting his arm touch the back of my neck. I wore pink butterfly earrings Mum helped me pick out from Diva. There are bigger cinemas in town nowadays. Their movies cost $22 a ticket and you can pay more to have white wine delivered in recliner chairs. If we go to Dumeresq Street, it’s only to watch the “Ballard’s Meat, bloody good meat” commercial. It’s become a legacy.

Down the road, a ceramic pig sits tall and proud on the corner of Campbelltown’s busiest intersection. Pig belongs to Tim’s Garden Centre, and he’s been the social commentator of the town for 10 years. The cars milling at the lights always know to look out for Pig’s gossip. He gets the news out quicker than the Macarthur Chronicle, with or without the appropriate use of apostrophes.

Sometimes Pig gets “pig-napped”, but the sign assures us that he’s probably off on an adventure. I’m sure Tim Pickles has been through many ceramic pigs.

When I was a teenager, the bridge that connected Macarthur Square to the Macarthur train station was always populated by emos with studded belts and fingerless gloves. They were likely listening to My Chemical Romance and Escape the Fate through tangled headphones, fiddling with their facial piercings and shuffling their black fringes over their faces. Nobody knows where the emos are now. Probably writing poetry on Tumblr.

On the first day of my new high school, after I’d left the previous due to bullying, someone in my class wrote their name on the table with an aerosol can and lit it on fire. The teachers spent more time disciplining than teaching the curriculum but that was okay. Some of them let us go to McDonald’s during our lunch break, which inevitably led us to Appin Bakery for a pie and down Mount Ousley to perve at the tradies at clock off.

When Todd was killed out the front of a party when we were 16 that shook things up. People kept saying the conflict was due to graffiti or girls or something. Either way, the community was torn.

Graduating Year 12 was difficult because there were people from both sides of the conflict in the room. They were tough looking characters with tattoos and a kind of unwavering loyalty that was to be admired. Not everyone got an applause when they were handed their graduating certificate.

As of 2016, only 47% of Campbelltown’s population over the age of 15 had completed Year 12.

As we hit puberty, the never-ending and comfortingly dark street beside Mount Carmel High School became the place to explore a lover’s body. That was at least until a police car pulled up and shone a light in the steamy car window, the light bouncing off pale bottoms and the soft skin on the inner thighs. You’d give the officer an ‘it’s consensual’ nod before baring your tits and waving them goodbye.

‘The Raby Walker’, the butt of too many jokes, sparked many conversations on Facebook about mental illness and respect. Whenever you’d drive to Minto railway station you’d be sure to see him in his stride. Sometimes people took photos of him and the Raby Walker Facebook Page would post it. The Raby Walker is still around; Mum’s called the hospital a few times over the years because he keeps running out into traffic.

On the rare occasion I’d stay out late in Kings Cross (before the lock out laws set fire to the industry), I’d catch the night rider home. The trains stopped running at midnight. The bus was always peaceful, with drunk teenagers dozing in the laps of their friends or lying across the seats, the suburban lights licking at the windows in the blur that comes with a big night. Sometimes we’d forget that the taxis wouldn’t pick us up from Minto station because it was “too unsafe” and we’d find ourselves ringing our folks, praying for a lift and a patient, sleepy voice on the receiving end.

There are a lot of places to eat in Campbelltown. Hooters is best for wings. If it’s your birthday, they’ll make you spell your name with your arse while you’re standing on a chair. They always say “Welcome to Hooters” when you walk in. Rashays is where you go if you want to leaf through a menu the length of a Bible and drink soft drinks from 2L glasses. If you’ve got a sweet ride with good subs and a spoiler, it’s more about the carpark. McDonald’s Woodbine on a Thursday night is the place to be, if you’re interested.

I remember the first time I went to a social occasion at a friend’s house in a wealthier part of Sydney. I cried into my mum’s shoulder the morning of, ashamed of my second-hand wardrobe and my lack of knowledge about makeup and fashion designers. She took me shopping and we bought a whole outfit – a conservative red dress from Dotti with a little black belt, small black heels and matching earrings. She lent me her black handbag with the pearl clasp. The first question I was asked by a girl at the party was “So, how many of your friends are pregnant?”. We were both burdened by ignorance.

There used to be a suburb called Claymore in Campbelltown. They’ve knocked most of the housing commission down now, rebuilding and changing the name so that new buyers can’t research the history of the place. It was full of houses with boarded up windows and sheets for curtains, front yards littered with glass bottles and ripped furniture, flag poles with the Aussie flag flying tall and proud.

In 2009, the Rosemeadow Riots left six men with gunshot and stab wounds and a mother of 15 children alongside six other families being served with eviction notices. I remember catching the bus down to Wollongong University years later and hearing stories from those who had experienced it. I heard a lady talk about hiding under a bed with her kid while she watched people waltz through her place with a bat. One of my best friends lived there. Her little brother once asked if my family was poor because we didn’t drink Coke at the dinner table.

I once confided in a friend that my family was struggling financially. He told me my parents were selfish, that they could have tried harder to earn more money so that I wouldn’t miss out on school excursions and international travel. His father was in gaol for financial fraud. I told him a kiss goodnight from my dad and a home cooked meal from Mum every night was all I could ever want. I didn’t feel like I was missing a thing. Dad let go of his business when I was born to work in a factory from 9-3 so he could be there for breakfast and dinner, to be there to ask about what I learnt that day and what my friends’ names were. Mum went to university when she was 40 because she got a scholarship and ended up the Dean’s Scholar. Even when she was studying and working, she managed to cook my sister and I cookies and cupcakes for school. No school excursion could have taught me about sacrifice and hard work in the same way.

Growing up, I felt pride watching the teen mums on my social feeds blossoming into kind and smiling parents. Watching their children grow as we did. Celebrating their first steps on Facebook as we celebrated our first jobs or our first cars. We knew that the vapid stereotypes didn’t do the hard work and sacrifice of being a teen parent justice.

Now, I’m watching friends make something of themselves: being the first in their family to go to uni, scoring record deals in the Aussie hip hop scene, buying a house and land package, starting plumbing businesses. Others I can see falling between the cracks, slipping into the cycle of the system.

For those of us who grew up here, Campbelltown was so much more than its stereotype: kids with rat tails and flanno-wearing, mullet-donning dads; muffin tops and tights-as-pants and ugg boots covering foot tattoos; re-growth and fake nails and neck tattoos; Southern Cross vinyl stickers on the back of Commodores and on the calves of young men. It was also home to the house that was full of the love and sacrifice of two parents who showed me a world that I could contribute to.

It’s winter in Campbelltown at the moment. Pig’s wearing his flanno and talking about the weather. It’s nice to be home.

Image: Tim's Garden Centre, Facebook

Image: Tim’s Garden Centre, Facebook

Cowabunga Surf, turf, and organ donation on Bondi Beach

When I arrive at Bondi Beach before sunrise, a B-double cattle truck is reversing along the promenade. Access to the Icebergs end of the beach is blocked off, and a security guards turns away several fluoro joggers and a skinny guy with a surfboard. As the light rises, people in white polo shirts sift through the gathering crowd, explaining what’s happening: the cows, they say, are from Unoodlya Station in the Northern Territory, near Alice Springs. From the cattle station they took the long route here, the scenic route – via the Barossa Valley, with a stop at Mulgoa in rural New South Wales.

The cows aren’t meant to be here, on Bondi Beach. They’re meant to be on the Harbour Bridge – that was Megan McLoughlin’s original plan anyway. McLoughlin is a double-transplant recipient from outback South Australia, who was weeks away from death when her transplant (a kidney and pancreas) finally came through. As the white-shirted volunteers explain, a few years later McLoughlin had the idea to drove a herd of cattle to Sydney, to raise awareness of Australia’s fatal need for organ donation, and of the difficulties country people face in accessing medical care.

The Bridge plan was knocked back, for obvious reasons. McLoughlin and the team behind her ‘Herd of Hope’, as it became known, quickly settled on the alternative location of Bondi. I’m from the country myself, and I can imagine the scene: some excited country folk gathered around a Lonely Planet guide to Sydney, and then, after being told the Bridge was off, going back to the guide to find the next biggest landmark.

The connection between cattle and transplants is a bit ambiguous, but I think I get it. When we were kids, my brother had to see a specialist every six months to keep him alive, so my first memories of Sydney are of the long car rides and motion sickness, the faulty boom gate at the Best Western, and the huge atrium of Westmead Children’s Hospital with its crazy benches and bright artworks. As we got older our parents wanted all of us to have braces, so every few weeks we’d drive the 150 kilometres to Dubbo to sit in the orthodontist’s chair for 20 minutes. When my appendix began to swell at school one day my dad picked me up and we drove the familiar Dubbo route (much faster than the orthodontist trips).

My mum, she’s never had good kidneys, and a while back the doctor in town recommended that she see a specialist regularly – so to Dubbo again, and again, and again. As you read this a thousand Holdens are on the long highway to Dubbo, or Griffith, or Alice Springs or Townsville or Broome, to wherever has a decent hospital or a hospital at all, for a broken bone or for chemo or to give birth or to have dialysis or hear the news that their transplant has fallen through last minute, again, and they’ll have to come back another time. The cows arriving at Bondi travelled roughly 3,000 kilometres from the Northern Territory to be here on the beach, which sounds like a long way until you realise that’s only ten trips back and forth from Dubbo.

When the sun is low over the breakers the first cow is pushed out of the truck and onto the promenade. The others follow, and together they look out towards the ocean. (I remember my first time too, little cows: How can there be so much water?) They’re pushed down the ramp and into a fenced-off area on the sand, where half-a-dozen stockmen and -women are waiting.

McLoughlin is on one of the horses. On another is her father, Jim Willoughby, who is telling the crowd that almost all of the drovers today are alive thanks to organ donation: David got a new kidney from his sister; Steve had a heart transplant from a deceased donor. There’s a big divide between the bush and the city, Willoughby is saying. “Once upon a time everybody in the city knew somebody who lived on a farm. Now it’d be one in a thousand.” McLoughlin takes the microphone: “Illness doesn’t care where you live.”

The crowd presses over the promenade’s railing as the cows are herded up and down the sand. A little girl in a Ripcurl wetsuit points. “That one’s pooping!” she yells.

“It is honey,” her dad says. “I’m going to step in that on my arvo surf.”

 

After the event is over I take two buses to Royal Prince Alfred, where my mum is halfway through today’s dialysis. Her Dubbo specialist diagnosed kidney failure in November last year, and she has been on the machine since. Rather than shuffling between home and Dubbo three times a week, Mum is staying in Sydney with relatives and with her children – shuffling, instead, between houses, because she’s worried about becoming a burden.

On the beach the survivors put on a sausage sizzle after the droving, and the white-shirts mingled with the public. There’s a community here at the dialysis unit too, although the mood is opposite. Dialysis is a regular thing, so the people who have been coming for a while are used to seeing each other at the same time each week, and they talk haltingly in the waiting room. “Have a good dialysis,” a man with a walking cane says to his friend. One woman, a carer, has been bringing her father to dialysis for years, and is in the habit of helping the nurses take tea and cheese sandwiches to the chair-bound patients.

The outside of the dialysis unit at Royal Prince Alfred Hospital

The outside of the dialysis unit at Royal Prince Alfred Hospital

The dialysis room is gothic – the ceiling low, the long room filled with bodies in chairs, the bodies covered with white sheets. Two tubes connect each sheeted figure to a machine. The tubes are filled with bright red blood. I hate the fact that the dialysis machines are shaped like upright coffins. Dialysis is not a permanent solution, and if you stay on it too long your health will deteriorate.

I’m told that in Spain, where they have an opt-out system of organ donation (rather than the opt-in system of Australia), dialysis is almost obsolete. Peter Singer has made the argument that people should donate their kidneys to strangers, since the risk to the donor is so low and the benefit to the recipient so high. Or else, Singer has argued, the Australian government could incentivise donations, with financial incentives for donors who give their kidneys while still alive, or by paying for the funeral expenses for deceased donors.

The panel on my mum’s machine tells us that the tubes have taken out 7.9% of her blood. On the front of her machine is a white circle of plastic, and every time it makes a full rotation the tubes jolt, at approximately the rate of a heartbeat. It brings to mind a quote I heard recently – that loving somebody is like holding your heart outside of your body.

There must be thirty chairs in here, all full. In Australia there are around 12,000 dialysis patients, although only 1,400 of those cases are considered urgent enough to be placed on the waiting list for a transplant. Last year only 510 deceased donations were made. Before an organ donation proceeds, the families of the deceased are asked to confirm donation, and of the 1,093 cases where donation was possible only 642 were agreed to – a dismal rate of 59 per cent (132 agreed-to donations did not occur for various medical reasons). 451 possible donations did not go ahead.

It takes about 14 seconds and a Medicare card to officially register to be an organ donor. Willing donors are encouraged to talk to their families, to make sure that their wish to donate is known and respected.

Calling on Paradise Laurie Anderson at HOTA on the Gold Coast

The sun is just rising behind the concrete skyline, jutting above and reflected in the lake in front of us, and my teacher asks whether I’ve done tai chi before. About twenty years ago. Do you remember what kind? She lists some options but I’m not sure. She nods and goes around the small circle, eight of us. Today we’re learning the Chen style. We start with our feet solid in the earth, bent knees, arms soft. Like you’re hugging a tree.

As she demonstrates the movements she recites the names in a voice that matches. Your hands like floating clouds. She points out that the actions might sound soft but their purpose is deadly. She makes a quick gesture. Decapitation.

She says one of her favourite parts of tai chi is practising with weapons and as she hops and leaps and kicks, moving fast to slow and back, this helps to learn it, imagining a sword in our hands. As we move through the steps, she occasionally stops to watch us, checking on the position of our bodies. It’s about making shapes. All of it is about circles.

As I follow along, I see how she’s open to the elements, her eyes wide, her instincts finely tuned. In the West it’s all about upper body strength. She raises her arms like a body builder. Like Superman. I blink at this word. Spoken in her tongue. It makes me smile as if I’ve tricked her into saying it. ‘O Superman’.

But the tree is top-heavy. We just topple over.

Beneath the slick surface, the schoolies, the fast cars, gold-plated metre maids and skyscrapers, the Gold Coast has slowly been emerging as a cultural hub. The expansion of HOTA (Home of the Arts) – pronounced hotter – and its first ever artist-in-residence, multimedia trailblazer Laurie Anderson, has established HOTA as a place willing to place the arts front and centre and take risks with programming. But there’s still a flavour of the parochial about the coast, the insecurity that is hard to throw off. At her first press conference, open to questions, the majority centre on Anderson’s first impressions of the Gold Coast. I’ve only just got here, she repeats once, twice, three times, with patience.

It takes me back to Lou Reed’s first interview at the airport on Australian soil in 1974 – the same sense of cultural isolation, of a country still wanting to prove itself – with a media unable to understand his irony, his attitude, his refusal to play the game: a performance that influences a whole generation of musicians in Australia like Nick Cave and Robert Forster as the punk age is dawning.

Used to jetting in and out of locations for a single performance, Anderson says it’s exciting to be able to hang in one place for a week and that what she loves most about creating and experiencing art is the chance to feel lost, to be disembodied; she hasn’t studied up too much on the Gold Coast because she wants to experience it as she goes.

During her residency, she has a busy schedule, crossing the boundaries of composition, spoken word, Tibetan music and philosophy, sound and visual arts. What brings it all together is her fascination with text and language and the ways in which our bodies can become instruments, tools of discovery.

Laurie Anderson on stage

Courtesy of HOTA.

When you see or hear Anderson perform, she makes the planned seem random, and there’s the sense of a firecracker about to go off at any moment; not in the threatening sense, quite the opposite, in a swirl of cartwheeling sound and a shower of bright colour and light.

The opening night performance at HOTA is in the dark except for a glitter ball. Sitting in a black beanbag, a techno-snowstorm raining down, it takes a while to realise Anderson is with us in the audience. As the string quartet, CODA, starts to play her composition, SOL — dedicated to Anderson’s teacher Sol LeWitt — the glitter ball swirls and so do the walls, forcing me to close my eyes, to adjust to the gravitron rush. Laurie covers her eyes too with her hand as the stars play on people’s faces. At times it seems as if the music, the storm itself, is coming out of her body, showering us with notes. The disco-stars turn the audience into fragments, pieces of themselves, broken mirrors reflecting the night sky and the performers.

Anderson and the staff prepare us with care for the next show, Stories in the Dark. We’ll be in pitch black. If we want to leave, we’ll need to raise our hand. There will be night-goggled staff to take us out. But there are gradations of darkness and like a child I’m disappointed that I’m not scared enough.

The light I can still see is Anderson herself, shrouded in a corner of the room, merging voice, synth and sound effects like a foley artist to her mind-games. And her voice, a voice I know so well, takes on notes of hypnosis. Picture this. The colour yellow. A painting of an island. Hawaii. As she riffs on the things she’s lost, the images she creates spring from imagined danger, a conditioned cinematic response. Footsteps come down an alleyway, knives are sharpened, a clap of thunder. The large rumble of a freight train. Anderson instructs me to wave my arms in front of my face, to do a fake smile just like Jacqui Kennedy suggests: to not use my eyes, so I don’t get wrinkles. In the dark, I do it all. My body can’t resist the words she uses. I feel like she knows me inside out.

I first encountered Anderson when I was about twelve years old in the early 80s. At my father’s property in northern New South Wales, near Kyogle, we’d play music out the open doors so loud it would bounce off the rainforested mountains around us. I’d dance as the moths would fight to get to the light. Dad would choose ‘O Superman’, I’d choose ‘Original Sin’. He’d choose ‘From the Air’. I’d choose ‘Dancing in the Dark’. Used to jetting to visit my father during school holidays, I was never a keen flyer after listening to Anderson. As soon as I heard the pilot say, ‘This is your Captain’, I’d remember her lyrics: the idea of your body, a vessel, falling, being out of control. That’s the trouble with Laurie’s songs. They have words you never forget:

Put your hands over your eyes. Jump out of the plane.
There is no pilot. You are not alone. Standby.
This is the time. And this is the record of the time.
This is the time. And this is the record of the time.

In conversation, performance mode, Anderson talks often of Lou Reed and her terrier Lolabelle. In Language of the Future, she even does a duet with the ghost of Lou on film. He sings while she plays her violin. Drops of moisture glisten on the screen. I have a small jar of men’s tears.

As she recites from the Tibetan Book of the Dead, in another twilight performance, she traces lost souls in the bardo, caught in limbo between death and rebirth. With everything she does, there is a strong sense of shared ritual and the amount of discipline it takes to make the work magnetic, an earworm that burrows into your mind and slyly shifts your perspective — on arts, politics, ethics, philosophy, death, love. At one point she does tai chi on stage, feinting with an invisible partner, raising up the idea of him again, as the names of the movements that she’s taught me appear behind her. Cloud hands. My body remembers them too from her lessons.

Anderson says she loves tai chi in a new town because it’s the best way for her to meet people, to exchange energy with her surrounds and get a sense of the place. It also offers up the opportunity to move through space with instincts more animal than human, and her face lights up when she talks about dogs, when she growls and barks and remembers Lolabelle in the documentary, Heart of a Dog. Originally performed in Sydney in 2010, the idea for a Concert for Dogs comes about from a conversation with Yo Yo Ma. She tells Yo Yo Ma that sometimes when she’s doing a concert she looks out and it seems that most of the audience are dogs and Yo Yo Ma replies that he has the same fantasy.

Laurie Anderson talking

Courtesy of HOTA.

At the Concert for Dogs on the Gold Coast, HOTA’s outdoor amphitheatre is packed with hounds and their humans on a leash. It starts off with areas for small, medium and large varieties, but pretty soon the German shepherds are sitting alongside the terriers and it seems to work. Composing for dogs means no low-end noise, no thunder: And I love bass, I love sub-bass; there are a lot of frequencies that are just cut off.

When Anderson hits the stage with saxophonist, Andrew Ball, it seems more easy-listening for humans, with a dash of Tom Waits thrown in. Given the talk of composing with certain frequencies out of human range, I am alert to the changes in the dogs’ behaviour. But they don’t sit attentively, turn their heads to the side or pluck up their ears. At the end of the concert, when Laurie encourages the dogs to let loose, to howl and bark, the dogs seem reluctant and polite, like when you open the door to a bird cage and the bird stays sitting in there, unwilling to be free. The humans bark and howl on their own.

The dogs didn’t know why they were there, but either do humans, really.
They had this relationship to music that was really kind of pure.

Anderson lives near the Hudson River, on the flood plain. During Hurricane Sandy, she watches the face of her dog as the seawater rises and moves up her street, flooding the basement where her archives are kept. She loses it all.

As she recovers from the initial devastation, she realises there are different ways to lose things, that she likes reading the inventory more than looking at the objects. She makes this re-forming into a book, All the Things I Lost in the Flood, and continues to embody this loss – of lovers, of pets, of objects, of memento mori – in the way her body moves, in the language she makes and the way small encounters filter into her performance:

When something happens, if you don’t scream, it goes somewhere.
The pain encodes, finds a place: the heart, loss; the jaw, anger.

At the start of Language of the Future, Anderson encourages the audience to shriek as loud as we can, replicating Yoko Ono’s scream the morning after Donald Trump is elected. Like the dogs, we seem reluctant at first, polite. But then we howl into the abyss so loud the sound bounces back at us from the stage, disembodied.

Anderson holds up her fingers to count and smiles and breathes us through the sound like a midwife, guiding us in that soft hypnotic voice, releasing the tension in the room before she picks up her violin.

 

*All italics are the words of Laurie Anderson during her residency at HOTA.

Performances – Sol/Stories in the Dark; Language of the Future; Songs from the Bardo; Concert for Dogs. Talks – Laurie Anderson in Conversation: All the Things I Lost in the Flood.

 

Laurie Anderson

Courtesy of HOTA

Winter in the City All the lonely people, where do they all come from?

You could die of loneliness in Sydney.

“We never do anything,” I say to my friends, “We’re always getting drunk and we think it brings us closer together, but it just creates the illusion of closeness, a comfortable buffer.”
Then I keep drinking.

Lately death has been all around me. Making sure I don’t forget her. Waving, grinning. Yes, I know you’re bigger than me. I lost a lot of friends to suicide this year. Two of them I found frozen in their final moments. Eyes and tongues bulging, blood pooling in limbs. No notes, no warnings. No grace, only surrender.

I’ve been feeling the loneliness creep up on me too. Creep up and erode.

Sydney is beautiful but it’s a hard place. Everyone’s on guard. Everyone’s gotta make sure they’ve got their brand. Everyone’s trying to protect themselves from something. I don’t know what’s instilled this in Sydneysiders, I just know that it wears me down.

There seems to be little room for emotional honesty. We drink a lot. We drink unholy amounts – and when we get drunk we like to throw our weight around. It’s the closest we get to expressing an authentic emotional spirit. Everything else is just cocaine and real estate.

People are friendly in Sydney. Most people are up for a chat while standing in line, there’s a courtesy that exists here that can fool people into thinking they’re making connections, but what they’re really dealing with is the gentrified gaze. Yeah, some bloke will offer you a bit of change if you’re short for the parking meter, yeah you can strike up a conversation with someone at the dog park for a half hour, yeah you can banter with all sorts of people at the bar, but it’s hard to get much further than that. The borders keep getting redrawn. People return to themselves or their cliques.

What’s most interesting about other cities is your ability to roam around on your own and have a good time. Going out in Sydney alone isn’t as fun. When you go out here, you’ll see clusters of people sitting in pubs or cafes and they’ll be turned inward. People don’t go out to mingle with other groups, they go out to sit with their own groups. Trying to pincer your way through is difficult, because conversation is a stop-gap, it’s the interim of things that has you tightly by the hands – it’s not a promise of something more.

You’ll go out to the pub, let’s say. There’s a group of people hanging out, let’s say. You approach, you chat. But the chat is an interruption, not an invitation. In other cities, hell Melbourne does this better too; in other cities you talk to someone and they invite you in, or you can turn that conversation into something else. A friendship, a relationship, a good time for just that one night, an adventure with a cool acquaintance or the best or worst sex of your life. Who knows what could grow from one hello, there are endless possibilities.

But Sydney makes this hard.

I spoke to some transplants who noticed this. They’ve said things like:

“Everyone talks about the cool stuff they’re doing but nobody actually includes you beyond asking for your Instagram.”

“I feel like I’ve made great connections in Sydney that just don’t develop into actual friendships.”

“Everybody is friendly, but nobody wants to put the effort into being your friend.”

“People here are fucking snobs.”

I went to Los Angeles a few years ago. Despite my disinterest in the city, my short time there was good, great even. Sitting in the car watching this gigantic, sprawling metropolis and its culture of ego passing by. This city of excess, a caricature of itself that seems to eat everything in its path alive. And in this superficial place, I examined the superficial facets of my life. I thought about how I sometimes spend so much energy holding on to something because it used to be good, never minding that all that’s left now is decay.

I thought about how I can have fun with anyone, but there are few I can rely on. How there are a lot of people in my life who feel they don’t need to be there for me, but never fail to call me when I’m needed for something superficial, telling me they love me. Nothing compares to u drunk dialling me at 2am asking for a drug dealer’s number, fuckwit.

I thought about how sometimes we have a fatal tendency to fall in love with experiences and relationships in superficial ways, simply because they mirror the best of our traits and suppress the worst of them. It’s easy to face yourself when every mirror you look into only shows you what you want to see. It’s why social media is the perfect honey trap.

I thought about how Sydney is really good at facilitating this sort of individualistic thinking and feeling. Suppression begets loneliness. Loneliness can be a killer, especially in a city so insular.

Some of us want our names in lights. I do just fine with an impression on the people I love. I don’t understand how a need to impress can take over someone’s life. Who cares what other people think, if the people who actually care about you, think you’re a piece of shit? At what point do they stop caring, because nothing will ever impress you?

That’s what Sydney feels like to me. And maybe it’s time to go, but I can’t tell yet. I have always felt this way, to some degree, about this city. Ever since I had anything else to compare it to – it’s been a startling reveal – and it’s nice to know I’m not insane or imagining things.

Perhaps I’m feeling this more than ever because of all the suicide. It’s all over the media. It’s all we’ve been talking about, amongst my friends and my family. I talk. I talk it out. Talk talk talk. From each conversation grows another vine to strangle all those fucked up feelings. But when the headlines move on, we’ll be forced to as well. We’ll convince ourselves to forget.

I was walking somewhere between Crown and Oxford streets when I got news that my friend had taken his life. The urge to cry began to violently climb my throat. I held it in as best I could; I made it all the way to Taylor Square – then I just let it all out.

People don’t have patience for sadness. They throw lots of tiny, colourful pills at us. Smile or something, it’s a gift, they say. Spin it into sinew. You frighten off the strangers, they say. Bury your sadness into the voices in the background amongst the clanging of glasses. Keep it to yourself. Burrow in for winter. People don’t have patience for sadness, but they love to watch.

A few weeks later I was entertaining a friend who was visiting from Chicago. She’d always complained that Sydneysiders are so damn nice but so damn skittish and it frustrated her.

I said yeah, we’re nice. Because we are. We’re really nice. But nice? Nice is a matter of etiquette. Nice doesn’t give anything away. It’s just window dressing.

Nice doesn’t give a shit if you’re lonely.

Many visitors and transplants alike have spoken about the “new kid” syndrome we’ve got here. I’m inclined to agree that when a new person is introduced to a group of people in Sydney, they aren’t immediately welcomed with open arms. They’re on probation. You gotta prove yourself. You gotta prove that you’re worth their time. That it’s worth it for them to step out of their self-absorption for a minute to make you feel welcome, to feel comfortable, to feel like you’ve got a chance.

We Sydneysiders are ambitious. Some of us take secret pride in that. But there are costs. How can we make time for new people when we’re too busy to maintain our existing relationships? Friendship isn’t supposed to be cordial, temporary, arm’s length or dependent on social standing. That’s not friendship.

I think about the final thoughts that may have swirled around the heads of my dead friends. I wonder if they felt things like:

“I don’t want to bother anyone with my problems.”

“I’m a burden.”

“Everyone’s got something to worry about.”

It all means the same thing. You aren’t important enough to matter. You don’t matter. Tell yourself that long enough, and maybe you’ll be yearning for a dirt nap too.

This city is beautiful, but it doesn’t belong to me anymore, and I don’t belong in it. When I walk through it, I feel like I’m walking through an old photograph. It feels like your old favourite t-shirt. Warped and stretched, torn threads, faded ink. People give me advice, they give us advice like: join a sports team, take classes.

Yeah, so you can say “Let’s grab a coffee sometime,” and they can say “Yeah, I’d love that,” and it never happens, because they’re frozen solid in their active wear and particular routine of self-care.

Yeah, I know when it’s dark at four and it’s raining, that commitment you made to someone when you had a drunken conversation in the bar the night before seems less important. Or that earnest date you arranged with someone in your yoga class suddenly seems less worthwhile when you’re not flooded with endorphins.

But it’s worth it. It’s important. We all matter, we all need to feel it too. That’s where we fall short. In a city so full of itself it pretends not to need anything or anyone else, it matters a lot.

Something inside me keeps telling me it’s time for a change. I think about my dead friends and I wake up every morning with a thirst for a single second of their living essence. And I wonder, when I leave this city, if there will be any more signs of them. Any signs of way back when, as I walk down the street, past the parlour, sip tea in the coffeehouse. Not to say I’m out the door, it’s just coming. I feel it.

 

If this story has any issues you can find support at Lifeline on 13 11 14, Suicide Call Back Service on 1300 659 467, MensLine Australia on 1300 78 99 78, Kids Helpline on 1800 551 800, or beyondblue on 1300 224 636.

7 Stages of Parking The shameless hunt to find a space for your car

 

1. HOPE

Enter packed car park. Generally, the mood is mild anxiety. But depending on your day, this may sway between anything from cheery equanimity, to victimised self-pity, onto pre-emptive aggression. You might oscillate between all these states. But basically you’re the supplicant here, the begging mendicant, at the mercy of the parking gods.

2. HUNT

You’ve circled and still no spaces. Look for people with laden trolleys heading for their cars. Stalk one, like a lion a wildebeest. But slowwwly. You don’t want to spook them. Then again, you don’t want some quicker predator gazumping you. The parked people have all the power here, and don’t they know it! Gesture to that man with the trolley; ask, as obsequiously as possible, if he’s leaving? Other hunters are lining up behind you. There’s a whiff of car-park rage. Does someone else have dibs on the spot you’re staking? If so, how threatening do they look? Is it a bitch mum in a Land Rover? A thug tradie after a slab at Liquourland? Doesn’t matter, coz the bastard whose space you were sizing isn’t leaving anyhow.

3. HATE

You’ve found a fresh mark and sit idling behind them as they load their car. They stop to take a leisurely phone call. Finally they finish packing, turn around and pretend to just notice you, sitting there at the wheel, grinning inanely at them. “Oh no, no,” they flap their hand. “I’m not going yet.”They casually saunter back towards the shopping centre, for sultanas, or a battery, or whatever else the fuck they pretend to have forgotten. But you know it’s just to mess with your head, to pull their little parking power trip. Prick! The chain of cars behind you – Tradie, Land Rover Bitch, P-Plate Student in shitbox Corolla – all give you a dose of the horn.

4. HELL YES!

You’ve circled, spotted and stalked, and now descended a DNA double helix into the Dantean bowels of the shopping centre. Finally, on Below Ground Four (BG4), you spot a car arseing out and you nose in. Yes! The transfer of status and power is immediate. You’re no longer some povo auto refugee, but a proud citizen of the country of Carpark. Shamelessly, you immediately forget where you came from – your roots, the little people – and now look down your nose with contempt and pity at all those poor saps still circling for a space, one of whom you were a minute before.

5. HIGH

Shopping done, you head to the car with a fat trolley. Baby, you’re about to peak. This is the payoff. This is where you get to play god and lord it over those parkless suckers. You affect a blithe unawareness of the cars now stalking you, hungrily licking their grilles at the prospect of getting your space. But there’s no rush on your part, not now. Take your time, prick tease the saps. Carefully stow your bags like they were Dodo chicks. Finally packed, turn and see the car waiting for your spot. You feel cheesed that this upstart clown (two nuns, actually) wants to jump in your grave. You slaved for this space and they want it for nix. Fuck that! You sigh, shake head, ‘sorry sister. Not going yet’. No, of course you’re not. You have to return your trolley, like a good citizen. Then maybe take a leisurely piss. Then look at the kittens in the petshop. As the hot cross nuns screech off, angrily laying rubber, you luxuriate in the glow of peak parking power.

6. HEROISM

You finally return to your car from whatever additional petty mission you pretended to be on. “Yes,” you signal to a waiting car. “Yes, I am vacating the spot and it is yours. You are the chosen one.” (She’s a bit of a spunk, actually.) The pathetic gratitude written on her face at your largesse is a blank cheque that pays you in full, and then some. You are saintly, Samaritan-like. With this spiritual cleansing there’ll be no need to flip two bucks at a street beggar for quite some time.

7. HELL NO!

You’re about to exit the carpark and reach for your ticket to activate the boom gate. It’s validated to give you three hours free parking. It’s… it’s not where it should be. It’s nowhere. FAAAARK! The Thug Tradie, the P-Plate Student, the Bitch Mother and, most especially, the pair of nuns in the cars lined up behind you hit you with a savage cacophony of horn blasts. No choice but to wave your stupid credit card in front of the scan and pay the twelve buck fee to be released. Drive out fuming, cursing. Acceptance will be a long time coming.

Central Station Blues A photographic poem for those that come and go

Each face hides a story, each gesture an impulse, each glance a perception, each graze or tattoo, a history. These are the details that often pass us by in the blurred motion of humanity at Sydney’s Central Station, washing over us as effortlessly as hours in the day.

Commuters, travellers and drifters forge ahead, eyes seldom meeting, headphones on, mobiles to ears, hands busily texting, each locked in a private universe – rushing to offices, homes, pubs, restaurants, country towns and coastal retreats; to see husbands, wives, sons, daughters, mothers, fathers, brothers, sisters, friends and lovers.

A different world surfaces when you pause and slow down – lines seek definition, the air clarity, faces come into focus, emotions become manifest, and the noise – the sirens, rattling trains, stifled coughs; the laughter of the schoolchildren and the outbursts of the unstable – dissipates.

I stand on the corner of Eddy Avenue and Elizabeth Street with a camera in hand and watch a man casting his eyes beseechingly heavenward; a schoolboy comforts his weeping girlfriend; a proud Lebanese woman trails her husband as he shouts into his mobile; a teenager on ice itches for a confrontation; an elderly Greek woman pushes a new vacuum cleaner in a shopping trolley; a boy leads his blindfolded friend in a game of trust, two young junkies huddle before an open handbag and a young woman looks over her shoulder into the menacing darkness.

I’m often struck by the frailty of the human condition – the wounds self-evident – but as the same people pass again and again, I’m also witness to their day-to-day resilience.

Justin Bieber: As Long as You Love Me Ghosts in the Machine

Last night I met Justin Bieber in a dream.

Not as he is now. He was broken down. Living on a river. And with his adorable girlfriend we punched on in bars. Snorted drugs in the gutter. Discussed Money May and everything Money May taught him about tipping in strip joints. And when I last saw Bieber he was foaming at the mouth. His girlfriend suggested we leave and come back later. And before leaving we knelt before Justin. Stroked his forehead. Told him he was handsome.

P.S. – He’s a really great guy.

‘Ghosts in the Machine’ is a column dealing with the unique and intimate ways that artists become iconic figures in our life. We are open to submissions of 300 words.

Cry in the Night Who do you call when troubled souls haunt your street?

The post to a Kings Cross residents group on Facebook began: “I need advice. A very mentally ill/homeless person has set up camp next to my house in the front yard. This is the second time.” It went on to say the person, a woman, screamed and swore loudly throughout the night, saying, among other things, that she had been raped. She also interrogated the darkness as to whether it had ever been hit in the head by a semi-trailer. And sometimes, for long periods, she sobbed.

“Pretty haunting sounds to try and sleep too,” the Facebook post continued.

While all this was distressing for the female resident, she was also compassionate enough to realise the woman on the street was evidently in a very troubled state. The resident wanted to do something. She didn’t feel comfortable about a direct approach. “I don’t want to talk to her coz I’m not really equipped to handle it correctly,” the resident explained.

Her Facebook appeal for advice goes on to describe her unsuccessful efforts to find an agency or support service that was equipped to deal with the situation. On a recent Saturday morning, Neighbourhood caught up with the resident at a Kings Cross café to find out more about this concerned citizen’s tale of frustration and disappointment.

“It was really upsetting stuff,” she said. “I mean, I’d almost rather hear people having a fight or a party than just this one person sobbing in the middle of the night.”

She went first to the Wayside Chapel which gave her the telephone number for a mental health line. She called but they said they couldn’t do anything, at least not immediately. “They have a crisis team that goes from spot to spot and check on people but they had already done that for that day. [They said] they would try and do it another day. I don’t know if that ever happened. I mean they are great, I’ve watched them handing out socks to people and clean underpants…”

Wayside Chapel then suggested calling the police or an ambulance. But the local police said they couldn’t do anything unless there was a public disturbance at the time the resident called them. “I mean, I thought because she was on someone else’s property, they could do it in the daytime in a civilised sort of way. Say ‘look you can’t stay here’. Give her a chance to pack up and move on. I didn’t realise you had to wait until she was screaming. Because kicking someone out of their space at 3am when they’re screaming, what are they going to do… it just didn’t seem conducive to any solution.”

The resident isn’t critical of police. “Not that they were unhelpful,” she says, “just probably used to doing this every day – and almost fatigued by it. Maybe it’s not the police’s department to look after the mentally ill, but that’s what Wayside had said, call the police.”

The woman was camped next door to the resident for about ten days. When some painters arrived at the vacant property she moved on. But when the painters left, she returned. That’s when the resident turned in desperation to Facebook. “That little Facebook group was amazing,” she says. “I got so much good advice; so many phone numbers and practical things like the contact for a women’s refuge.”

Soon after though, the owner of the property where the woman was camped called the police again. He had tenants ready to move in – and because he is the owner it seems he could, unlike our troubled Facebooker, get the police to act on a trespass and move her on.

“She’s at the Wayside now,” the resident says. “It’s nice to see her there sitting with people. She has a dog, she’s getting some refuge during the daytime. I don’t know where she’s staying at night.”

While there’s a patchwork of agencies and organisations to deal with people on our streets, and many do extraordinary work with limited resources, this resident’s experience left her questioning whether some people simply fall between the cracks between each service’s rigidly defined roles and responsibilities. There’s also a lack of available and easily accessible information to guide a concerned citizen about what to do, who to call. She would like to know there are systems to ensure that people such as the woman who camped next door to her can be properly looked after.

“Taken in somewhere, stabilised if necessary, have their medical and other needs assessed. Are they on medication? Given some food.” Without that, she says, just moving them on simply relocates the problem. And for some that might be solution enough. “It’s the sort of thing you’d do if you thought ‘I just want it out of my face.’ There’s some pretty unkind people around.”

Dealing With It Endometriosis affects one in ten women

It all began for Sylvia Freedman when she got her first period. “I was spoilt rotten. My mum even threw a period party for me with all the women in my family. I felt quite proud that I was maturing.”

“Back then, all the girls in the year above had had their periods so I felt like: yes! I’m in the club.”

But Freedman wasn’t in the club.

Years of suffering and debilitating pain followed, only to be repeatedly told by health professionals that she just had ‘period cramps’ and to learn to ‘deal with it’.

“Inside it felt like I was being ripped apart,” she says. “It just wasn’t the kind of pain that I could push through.”

At 21, Freedman underwent a laparoscopic surgery that finally diagnosed her with Endometriosis. Multiple surgeries followed and doctors kept telling her “not to worry”. Yet, she was still on the couch in chronic pain, unable to work and study for university.

Sylvia Freedman in hospital. Image: supplied.

Sylvia Freedman in hospital. Image: supplied.

Lesley Freedman had had enough of watching her daughter suffer. Using her background in media and research, she discovered that a drug called Visanne was being used overseas to good effect. She and her daughter Sylvia launched an online petition to bring it into Australia. After 74,500 signatories and within weeks of the petition closing, Bayer had agreed to release the drug into Australia.

Sylvia Freedman is now well known for her national advocacy work as the co-founder of the not-for-profit, health promotion charity: EndoActive Australia and NZ.

In December 2017, she found herself at Parliament House, delivering a speech including her own struggles with endometriosis. After Freedman sat down, to her surprise health minister Greg Hunt issued a formal apology as well as announcing that he would implement the first ever National Action Plan for endometriosis.

“It was a monumental moment,” says Freedman. “A real pinch yourself moment. To all of a sudden have recognition after going so long without, was incredible for us.”

Endometriosis is a disease that affects one in ten women worldwide. It occurs when cells similar to the lining of the uterus infiltrate the pelvis. It can lead to excruciating, chronic, pelvic pain and, in some cases, infertility. It affects roughly 700,000 Australian women, yet endometriosis remains one of the most underfunded and unrecognised conditions.

“What drives me is a sense of injustice,” says Freedman. “For years this serious public health issue has been unrecognised and overlooked.”

Finally, through people like Freedman, change is happening. Celebrities such as Emma Watkins from the Wiggles, the U.S. singer Halsey and Lena Dunham, creator and writer of HBO series Girls, have for the first time spoken publicly about their struggle with endometriosis. But for Freedman, there is still a long way to go.

Along with the Pelvic Pain Foundation of Australia, Endometriosis Australia, the Queensland Endometriosis Association, and the Canberra Endometriosis Network, Freedman formed an advocacy body called the Australian Coalition for Endometriosis (ACE). Together, they are now assisting the federal government to design the National Action Plan for Endometriosis, focusing on education, research and care. Most recently, $1M to raise awareness amongst GPs has been announced.

Sylvia Freedman on a verandah with a laptop and a hot drink

Sylvia Freedman. Image: supplied.

“GPs absolutely need to have more awareness on endometriosis,” says Freedman. “They are very, very important in this instance because they are probably the first port of call. It is imperative that they have an intimate understanding of, and compassion for women and girls.”

Freedman still suffers from endometriosis. Managing her symptoms involves eating an anti-inflammatory diet, getting enough sleep and exercise.

“I take the good with the bad,” she says. “This disease has taught me strength. The things I have been able to achieve outweigh the months and years I have spent in bed and in pain.” Freedman says her advocacy work has also given her purpose. “Now I have the opportunity to help others which I am really passionate about.”

Late for the Sky Gokay Gul documents the endangered birdlife of Sydney Park

I first met the man with a bird for a name down at the dog park – Sydney Park – at the loopier, tail end of King Street. I was jogging along my usual route, up and over hills, dodging the beasties. And there he was, conspicuously white telephoto lens in hand, intent on something across the wetland. I stopped short, exiting my jogger’s reverie. “What can you see?”

He didn’t mind lowering the lens, and pointed. A flitter of brown and white wings, a long, fine beak, and skinny legs to match vanished into the reeds. It was a rare Latham’s snipe, the man told me, just arrived from Japan. Each year they fly 7,000 kilometers in three days. Close to the end of its journey this one had stopped to rest here. You have to be patient to spot it amongst the coots and moorhens, the soft little brown ducks and the occasional pelican.

The stranger with the camera and I liked each other at once. I suspect I’m not the only one to fall for his birdy charms.

Gokay Gul came to Australia from Turkey, 12 years ago. He doesn’t like to say why he left, just that it had changed back in his home country. But he’s here now, at the southern end of Sydney Park most days. “People don’t know how lucky they are,” says Gokay, looking me in the eye. “Because to understand the value of something, you have to take those things from the people’s hands.” He shrugs; loss may be the price of enlightenment, but he doesn’t want to see anyone lose anything in order to value it. Our ignorance is just fine.

Now I often stop to chat about what he’s been seeing. One time it was dotterels – Gokay had seen a pair, carrying their chicks; “their little legs hanging down”. Black swans and cygnets are easy to spot. There’s your bog standard pacific black duck and the pretty chestnut teals, plump little baillon’s crake, banded rails and olive-backed orioles, and then blue kingfishers.

“I rescued the life of a baby kingfisher, did I tell you that?” Gokay says. “Today I couldn’t see that kingfisher on the pole, but there is a kingfisher family living here. I was taking pictures. And between these trees and the high trees over there is a creek, and I was walking there and all of a sudden I saw many birds attacking something.”

He raced over to see. “And when I went there a tiny kingfisher baby was being attacked by around 20 native miners and currawongs. Now, the camera is in my hand. I can zoom in and take a picture of bird being killed by others, but no. I took a few pictures, and dropped my lens on the ground, ran to the bird, got it in my hands. The bird was with me one night. I fed it with lizards, and next day I released it just beside the pole there, in front of the parent – and it’s one day I believe I did something right.”

Gokay has forever been a rescuer. Since childhood, always a lizard in the pocket, a bird in a box brought back from the brink. Is it natural to save a kingfisher? Well, no. It’s a park. The balance of nature is all skewed. I’m with Gokay on the rescue of this rare bird. To lose a noisy miner or two to starvation wouldn’t hurt – they’re an increasing plague, and an aggressive invader in other bird territories.

But the scourge of miners is not the only concern Gokay has for the Park. He worries about the One Sydney Park development plans to build apartments on the eastern side, and wants more fencing to protect the wetlands from playful dogs – though he loves both dogs and birds – he’s the guy always with his two distinctive, lamb-like Bedlingtons.

As we talk, pile drivers hit the ground again and again and a digger does its work just a few metres away where WestConnex is building a massive interchange, an overlapping spaghetti junction which will take the cars arriving there out and around both sides of the park and spit them back into the suburban streets.

The impacts of these sweeping changes are not lost on Gokay. Come at night and the southern end of the park is awash with possums migrating, he says, from the WestConnex work site. Powerful owls follow the possums, tom cats too. A friend saw a fox. And now, next to the apartment development site, Gokay sees a tawny frogmouth has set up a nest. He’s seen a dead chick on the ground, looked upon by its parents. Their preferred home of ratty-looking trees are marked with a cross, for removal.

Gokay Gul and I say farewell once again. He’s spotted something new and I resume my trotting pace. What he can see, and what you and I can, are vastly different. The fine detail. The magic living all around.

Funeral for a Friend Farewelling Rajani Enderby

On a wall in her Bondi home hangs a strikingly macabre portrait of Rajani Enderby. It is painted by Steve Kilbey, frontman of the Australian rock band The Church, whose merchandise she managed for some years. Describing the picture at her funeral last month, Kilbey said: “I painted Rajani as Kali, the [Hindu] goddess of destruction, with my severed head in her hand… And she loved that. She really loved it.”

Kilbey had a sometimes-challenging friendship with Rajani. He ad-libbed all about it during an anarchically hilarious, poetically profane and heartbreakingly beautiful preamble to the song he performed – as per the strict instructions she’d left him two months earlier – for the 400 or more mourners who attended her funeral at Mary Immaculate Catholic Church, Waverley, on May 24.

She would have loved it, really loved it.

As she would have loved the eulogy delivered by her husband, Scott Enderby, in which he catalogued promises to the woman he’d married 17 years earlier but who had died, too young, at 52.

“I promise,” Enderby said, “that I will strive to be that person you saw in me… that I will use my artistic talents more… that I will be more compassionate and strive to assist peoples’ struggles as positively as you did … that I will always endeavour to add the Tamarind to the curry at the right time.”

Rajani’s curries became the essential metaphor. She was born Rajani Rajaretnam in 1965 to Sri Lankan Tamil parents in Malawi, where her father was accountant to the president. Their lineage could be traced to Tamil royalty, but Rajani spent most of her childhood in Malawi and Zambia, only months in Sri Lanka. Her family was forced to flee Sri Lanka once and for all after civil war erupted. She landed in Sydney in 1988.

Rajani studied accounting but later music engineering. She cultivated lifelong artistic friends, and she discovered passions that she nurtured until her death. In his eulogy, her husband thanked her for sharing them: “cooking, design, fashion, antiques, history, culture, human rights, music, art, philosophy, succulents and cactus growing, retail therapy, charities, saree-fitting, party-throwing, architecture, Swedish pottery, retro furniture and science fiction… my social circle quickly became enriched like a great spicy curry with many flavours, simmering and developing its complexity as time moved on.”

Enderby, a drummer, a surfer, cast himself as less sophisticated than his worldly wife. “Nevertheless, she must have seen some potential in me… when I casually proposed a potential matrimony across the pool table at the then poker machine-ravaged Annandale Hotel sometime during the year 2000, I was surprised when she didn’t think it was the worst idea I had come up with, and we completed the deal in 2001.”

Scott and Rajani Enderby at their wedding

Scott and Rajani Enderby at their wedding

The melting pot of people and ideas led them to their eclectic business in the Vividshop, with its homewares, giftware, jewellery, women’s fashion, vinyl records, and the works of artists they have fostered and exhibited. Right outside, at the junction of Crown and Devonshire streets, is the war zone of the light rail’s construction through Surry Hills, which has been crippling for scores of businesses, theirs included. Rajani harnessed her rage as energy, as she had with other injustices, campaigning for refugees or the environment, fundraising for charities.

“Gee, Rajani was a kind and lovely woman,” Kilbey’s brother told him soon after the shock of her death. Kilbey replied: “She wasn’t always kind and lovely to me.” To which their friend Frances chimed in: “That’s because she always kept it real for you.”

Kilbey divulged this conversation as he stood before the funeral congregation, wielding his guitar. “Within about two minutes [of meeting her], Raj was like the Subcontinental sister and conscience I never had. ‘Fuck, Kilbey, I wouldn’t do that. Oh, that doesn’t look very good. What did you put that up on Facebook for? That’s terrible.’ But when she said something good, you could believe it. We were like brother and sister squabbling and fighting and sulking and then reuniting and dreaming up silly plans.”

She was a hard taskmaster when Kilbey exhibited his paintings at Rajani and Scott’s former venture, a retro shop on Bondi Road.

When he “fell upon hard times after too much good living” in 2015, Kilbey moved into the Enderby home for a few months, “which was the most creative period of my whole life. I was painting day and night; I was making music.”

And he witnessed a constant tide of people through that house. “Every night there were singers and painters and landscape gardeners and surfers and conservationists and lefties and filmmakers and photographers and weirdos and strange people, just flowing in and out every night.”

They were all there in the church pews. Rajani had seen the good in people, “even if it was often hidden”, as Scott Enderby said. She corralled them, like an impresario of good souls, especially if they had a creative bone in their bodies. Among the mourners were musical artists: David Lane, Lindy Morrison, Declan Kelly, Mitch Anderson…

Rajani Enderby had a big life; not long but big. Rajani in Bondi.

Rajani in Bondi.

Kilbey told them he painted Rajani in the guise of Kali, the awesome, sword-wielding, head-severing, invincible goddess. Rajani, though, was mortal. She had long been afflicted with terrible nerve pain, never properly diagnosed. “She never did talk about this damned disease,” Kilbey said. “Oh, I’m all right,” she’d tell him. “You don’t worry about me. I’m worried about you.”

After moving out of her house, Kilbey returned one night and demanded a vodka. “I was pretty angry about something. And Rajani said, ‘No, I’m not giving you a vodka. You don’t drink.’ … I said, ‘Give me a fuckin’…’ And she gave me a vodka and then I passed out and hit the floor.

“The next day she texted me and said, ‘If you’re gonna die somewhere don’t do it around my place. I’ll have all your angry fans after me.’

“She was more than a friend… she was an inexorable force… The last time I saw her was in the shop a couple of months ago. She didn’t look well but she was feisty and she was chasing me around the shop – ‘I’ll get you, Steven Kilbey!’ – with her walking stick, and sort of tapping me and hitting me and prodding me … and we agreed I was going to do another exhibition in her shop. I was really looking forward to that.”

She told him that day: “You’re gonna play a song at my funeral, aren’t you, Steven Kilbey?”

“And I said, ‘Yeah, which one do you want, Rajani?’ ‘You know which one I want.’ ‘Oh, don’t make me play that one, Raj.’ ‘That’s the one I want and you’re gonna do it.’ So, this is for Rajani.”

Kilbey proceeded to play ‘Under the Milky Way’, the sublime 1980s hit that refuses to let him go.

On a Friday night last month, Rajani and more than 30 friends helped Scott celebrate his 50th birthday at a Surry Hills restaurant. There was cheer and much singing. They crooned ‘This Guy’s in Love with You’.

The next morning, Rajani was too unwell to accompany Scott to the shop. He called a few times during the day. She didn’t reply, but that was not so unusual. That night, he found her on the couch. He attempted resuscitation. The ambulance arrived. There was nothing they could do.

Like Shiva, Kali is a destroyer but also a transformer. She destroys darkness and ignorance and egos. She saves and liberates souls.

“I fear the future,” Scott Enderby told his fellow mourners, “without my soulmate, protector and advocate. However, I realise that Rajani’s legacy and unbreakable connections with so many amazing human beings has also offered me the opportunity of having the best support group ever.

“Thank you, my beautiful friend, for seeing enough good in me to feel I was worth the effort, and I will endeavour to justify your faith and make you proud… until we meet again.”

Rajani

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